Trying to assess changes in an intermittent disease is not easy and just this experience has given me a great appreciation for the difficulty in developing measuring yardsticks that researchers face. For instance Parkinson’s tremors are intermittent, happening mostly when I am resting, stressed or overtired. I rarely have them while needling but they come on while riding the subway or just as I drop off to sleep. I suppose that one could invent a wrist monitor that would measure tremors per day and perhaps group them, but I have to rely on memory to fill out the Parkinson’s questionnaire, and that is not exactly reliable. Still people around me tell me that tremors are reduced. Stamina is up too- also hard for me to quantify but I wasn’t walking up to the park before or along boardwalks as I did in St. Petersburg between hyperbaric treatments.
Now some people show evidence of change right away- like the Canadian hockey coach I wrote about- and others may see nothing for 6 months. I seem to be mostly in the delayed category. It has after all been only 2 1/2 months, but this is an interim report.
I had been haunted by the size of the syringe of unused stem cells that was leftover and extracted from the IV when my small veins had given out. After consulting with StemGenex they pointed out that of the 600 billion stem cells extracted, 99% had been used. Those in the IV were diluted with platelet rich plasma, unlike those directly injected. It looked like more than 1% though. I still wish they had found a second IV site, but at least I got most of the cells and more than average.
I saw some immediate improvement in my foot but it didn’t stand up to reinjury from the deformity. The tremors are down and my stamina is up, both of which are significant. I don’t type as many extra symbols when I use my laptop and that makes writing easier. And my win rate for solitaire which is a proxy for both brain function and manual dexterity is up by 1%. I will have bloodwork and eye test results later.
Anyway, I thank all of you who helped me with the stem cell implant and after care. I’ll keep you up to date as the cells proliferate and things develop.
And if you would be so kind as to continue with support: Help a Healer